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"This volume presents the collective adventure of Dingdingdong, the Institute for the Co-production of Knowledge about Huntington’s Disease, founded in 2012 between Paris and Brussels.Katrin Solhdju’s Testing Knowledge: Toward an Ecology of Diagnosis pursues the question of taming the violence of the new species of medical foreknowledge represented by genetic testing. Adopting historical and epistemological perspectives on diagnostic situations, including observations from anthropological field research, speculative storytelling, and ancient oracles, Testing Knowledge proposes a new ecology of predictive diagnostic gestures, which potentially concern us all.Testing Knowledge is preceded by the Dingdingdong collective’s Manifesto (2013), which tells the story of the young Alice Rivières, who in 2006 took the presymptomatic, genetic test, foretelling her that she will eventually develop Huntington’s. Her first-person account of the revelation of her test results, which she experienced as an act of poisoning or cursing, pulls the reader into the manifold ethical, psychological, and existential issues inherent to medical predictions.Testing Knowledge is also preceded by a foreword from Alice Wexler, author of Mapping Fate: A Memoir of Family, Risk, and Genetic Research, and is followed by an afterword by philosopher Isabelle Stengers."
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At present citizens are more aware of their health and care rights and more literate about their disease. Furthermore the continuous development of technological and bio-medical solutions are alimenting the expectation for longer and better life expectancy, even despite the diagnosis. Patients require to be higher involved in the decision making about their care and are willing to deeply entangle all the possible treatment options, their advantages, and their risks. In other terms, citizens today want to be treated not only as “client” but mainly as partners of the medical action and as co-authors of the success of their healthcare pathway. Due to this socio-psychological change in patients’ attitude, healthcare systems today are claimed to a deep revision of their practices and organizational models in order to become better responsive to patients’ expectation and more sustainable and effective in the management of their services. Patient participation and engagement in healthcare management, indeed, is today acknowledged by policy makers and healthcare experts as a valuable option to orient changes and actions of the healthcare systems. Several empirical studies have demonstrated the positive outcomes of a participatory care approach at the clinical, psychosocial, and economic levels. Patient Engagement, thus, appears today not only an ethical but also a pragmatic imperative for the innovation and the improvement of healthcare system. Moving from these premises, this e-book collects first research experiences, conceptual contribution and review of good practices in the area of Patient Engagement promotion. The e-book also discusses the relevance and the theoretical linkages between the concept of Patient Engagement and that one of Patient Centered Medicine.
shared decision making --- doctor-patient communication --- patient activation --- patient education --- patient empowerment --- patient engagement --- patient-centered medicine
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Healthcare aims to be patient-centred but a large gap remains between the fine words and the reality. Care often feels designed for the convenience of the organisations that deliver it, and not enough around patients and their families, or even around the frontline staff who provide it. Why does this happen? What does it feel like? What can be done about it? This book stimulates reflection on these questions by listening closely to those at the frontline. It provides accounts from patients, carers and healthcare professionals who are patients about what it's like when services get it right, and wrong, from birth up to the end of life. Quite simply, we want to draw upon the power of storytelling - which is increasingly valued as a tool for learning - to help policymakers and practitioners to understand how to deliver better care. We also hope to enlighten the general reader about how they might go about navigating "the system" while it remains imperfect. There is a growing literature of first-person accounts from patients and from healthcare professionals. This book differs by providing a collection of narratives of experiences of the NHS in England to paint a rich and varied picture. Alongside these narratives we provide some international context, and an overview of the history of moves towards a more patient-centred approach to care. We present the theory and practice of storytelling in the context of healthcare. We also seek to help the reader to draw out the practical learning from the individual accounts.
Medical care --- Patient participation. --- Great Britain. --- Medical cooperation --- Participation --- Therapist and patient --- National Health Service (Great Britain) --- NHS --- NHS Executive --- NHS organisational culture. --- National Health Service. --- biographic narrative method. --- kindness and compassion. --- listening to patients. --- organisational competence. --- patient centred care. --- patient empowerment. --- professional competence. --- the power of storytelling.
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The emotional and social components of teaching medical students to be good doctorsThe pelvic exam is considered a fundamental procedure for medical students to learn; it is also often the one of the first times where medical students are required to touch a real human being in a professional manner. In Feeling Medicine, Kelly Underman gives us a look inside these gynecological teaching programs, showing how they embody the tension between scientific thought and human emotion in medical education. Drawing on interviews with medical students, faculty, and the people who use their own bodies to teach this exam, Underman offers the first in-depth examination of this essential, but seldom discussed, aspect of medical education. Through studying, teaching, and learning about the pelvic exam, she contrasts the technical and emotional dimensions of learning to be a physician. Ultimately, Feeling Medicine explores what it means to be a good doctor in the twenty-first century, particularly in an era of corporatized healthcare.
Gynecology --- Physicians --- Pelvis --- Human anatomy --- Gynecologist and patient --- Study and teaching --- Training of --- Examination --- Social aspects --- Models --- United States. --- Affect. --- Affective economies. --- Biopolitics. --- Bodies. --- Cadaver. --- Care. --- Clinic. --- Communication skills. --- Consent. --- Embodiment. --- Emotion. --- Emotional socialization. --- Empathy. --- Expertise. --- Feeling. --- Feminism. --- Gender. --- Governmentality. --- Gynecological teaching associate. --- Gynecology. --- Intimate labor. --- Medical education research. --- Medical student. --- Medical students. --- Medicine. --- Patient centered medicine. --- Patient empowerment. --- Patient health movement. --- Pelvic exam under anesthesia. --- Pelvic exam. --- Perception. --- Professional dominance. --- Professionalism. --- Reproductive health. --- Science. --- Sensation. --- Sexuality. --- Simulated patient. --- Simulation. --- Standardization. --- Subjectivities. --- Work.
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This Nutrients Special Issue focuses on neonatal nutritional advances for inflammatory disorders affecting infants such as necrotizing enterocolitis (NEC). Nutrition can significantly impact the development of certain diseases that afflict infants. This Special Issue aims to bring together the latest research on the role of nutrition in preventing or impacting neonatal disorders. Specifically, this Special Issue focuses on the role of breast milk or donor breast milk and the various components in milk that have been demonstrated to protect against NEC and other inflammatory diseases. This issue provides a comprehensive composite of the advances in nutritional strategies that can modulate or prevent neonatal intestinal disorders.
donor breast milk --- human milk --- milk analysis --- very low birth weight --- preterm --- growth --- preterm infant --- donor human milk --- formula feeding --- breastfeeding --- necrotizing enterocolitis --- breast milk --- prematurity --- immunity --- newborn --- inflammation --- colostrum administration --- premature neonates --- clinical outcomes --- intestinal resection --- short bowel syndrome --- intestinal adaptation --- microbiome --- parenteral nutrition --- hormones --- milk fat globule --- long chain polyunsaturated fatty acids --- premature infants --- neonatal --- intestine --- glycosaminoglycans --- intestinal inflammation --- bioactive --- donor milk --- gastroschisis --- intestinal atresia --- human milk fortifier --- patient empowerment --- neonatal nutrition --- communication --- product labeling --- NICU parent --- extracellular vesicle --- exosome --- immature intestine --- formula --- osmolality --- breastmilk --- late onset sepsis --- bloodstream infections --- enteric pathogens --- human milk banks --- NEC --- meta-analysis --- breast-feeding --- spontaneous intestinal perforation --- feeding --- nutrition
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Dit boek is een verslaglegging van de onderzoek naar de interactie tussen verpleegkundigen, patiënten en artsen op verpleegafdelingen. Veldwerkonderzoek (participerende observatie) is verricht om in deze interactieprocessen inzicht te verkrijgen.
Nursing --- Verpleegkunde --- Nurse-Patient Relations. --- Patient Participation. --- Interpersonal Relations. --- Gender Issues --- Husband-Wife Communication --- Partner Communication --- Relations, Gender --- Gender Relations --- Social Interaction --- Communication, Husband-Wife --- Communication, Partner --- Communications, Husband-Wife --- Communications, Partner --- Gender Issue --- Gender Relation --- Husband Wife Communication --- Husband-Wife Communications --- Interaction, Social --- Interactions, Social --- Interpersonal Relation --- Issue, Gender --- Issues, Gender --- Partner Communications --- Relation, Gender --- Relation, Interpersonal --- Relations, Interpersonal --- Social Interactions --- Friends --- Emotional Intelligence --- Patient Activation --- Patient Empowerment --- Patient Engagement --- Patient Involvement --- Patient Participation Rates --- Activation, Patient --- Empowerment, Patient --- Engagement, Patient --- Involvement, Patient --- Participation Rate, Patient --- Participation Rates, Patient --- Participation, Patient --- Patient Participation Rate --- Refusal to Participate --- Nurse Patient Relations --- Nurse Patient Relationship --- Nurse Patient Relationships --- Nurse-Patient Relation --- Patient Relations, Nurse --- Patient Relationship, Nurse --- Patient Relationships, Nurse --- Relations, Nurse Patient --- Relations, Nurse-Patient --- Relationship, Nurse Patient --- Relationships, Nurse Patient --- Nurse-Patient Relations --- Patient Participation --- Interpersonal Relations --- Social Relationships --- Relationship, Social --- Relationships, Social --- Social Relationship --- Social Behavior
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Disease management --- Outcome assessment (Medical care) --- Patients --- Disease management. --- Patients. --- Behavioral Sciences --- Intelligence --- Patient Care --- Patient Participation --- Medical Communication. --- Assessment of outcome (Medical care) --- Outcome evaluation (Medical care) --- Outcome measures (Medical care) --- Outcomes assessment (Medical care) --- Outcomes measurement (Medical care) --- Outcomes research (Medical care) --- Patient outcome assessment --- Patient Activation --- Patient Empowerment --- Patient Engagement --- Patient Involvement --- Patient Participation Rates --- Activation, Patient --- Empowerment, Patient --- Engagement, Patient --- Involvement, Patient --- Participation Rate, Patient --- Participation Rates, Patient --- Participation, Patient --- Patient Participation Rate --- Informal care --- Care, Patient --- Informal cares --- care, Informal --- cares, Informal --- Proxemics --- Behavioral Science --- Proxemic --- Science, Behavioral --- Sciences, Behavioral --- patient behaviour --- patient information --- patient satisfaction --- decision support systems --- Persons --- Sick --- Medical care --- Clinical medicine --- Health services administration --- Refusal to Participate --- Evaluation --- Decision making --- Cost control --- Behavioral Sciences. --- Intelligence. --- Patient Care. --- Patient Participation. --- Human medicine
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Patient Participation. --- Patients. --- Patient Advocacy. --- Physician-Patient Relations. --- #SBIB:316.334.3M40 --- arts-patiënt relatie --- mondigheid patiënt --- Doctor Patient Relations --- Physician Patient Relations --- Physician Patient Relationship --- Doctor-Patient Relations --- Doctor Patient Relation --- Doctor-Patient Relation --- Physician Patient Relation --- Physician Patient Relationships --- Physician-Patient Relation --- Relation, Doctor Patient --- Relation, Doctor-Patient --- Relation, Physician Patient --- Relation, Physician-Patient --- Relations, Doctor Patient --- Relations, Doctor-Patient --- Relations, Physician Patient --- Relations, Physician-Patient --- Relationship, Physician Patient --- Relationships, Physician Patient --- Clinical Ombudsman --- Patient Ombudsman --- Patient Ombudsmen --- Patient Representatives --- Advocacy, Patient --- Ombudsman, Clinical --- Ombudsman, Patient --- Ombudsmen, Patient --- Patient Representative --- Representative, Patient --- Representatives, Patient --- Commitment of Mentally Ill --- Patient Rights --- Clients --- Client --- Patient --- Patient Activation --- Patient Empowerment --- Patient Engagement --- Patient Involvement --- Patient Participation Rates --- Activation, Patient --- Empowerment, Patient --- Engagement, Patient --- Involvement, Patient --- Participation Rate, Patient --- Participation Rates, Patient --- Participation, Patient --- Patient Participation Rate --- Refusal to Participate --- Medische sociologie: zorgenverstrekkers, relatie met hulpvragers --- Sociology of health --- Social medicine --- Patient Participation --- Patients --- Patient Advocacy --- Physician-Patient Relations
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Holistic nursing --- Nursing --- Health Promotion. --- Holistic Health. --- Nursing. --- Patient Participation. --- Soins infirmiers holistiques --- Soins infirmiers --- Holistic nursing. --- Soins infirmiers. --- Médecine holistique. --- Patient Activation --- Patient Empowerment --- Patient Engagement --- Patient Involvement --- Patient Participation Rates --- Activation, Patient --- Empowerment, Patient --- Engagement, Patient --- Involvement, Patient --- Participation Rate, Patient --- Participation Rates, Patient --- Participation, Patient --- Patient Participation Rate --- Nursings --- Medicine, Wholistic --- Wholistic Health Care --- Wholistic Medicine --- Wholistic Therapies --- Holistic Medicine --- Holistic Therapies --- Medicine, Holistic --- Wholistic Health --- Care, Wholistic Health --- Health Care, Wholistic --- Health, Holistic --- Health, Wholistic --- Holistic Therapy --- Therapies, Holistic --- Therapies, Wholistic --- Therapy, Holistic --- Therapy, Wholistic --- Wholistic Therapy --- Promotional Items --- Health Campaigns --- Promotion of Health --- Wellness Programs --- Campaign, Health --- Campaigns, Health --- Health Campaign --- Health Promotions --- Item, Promotional --- Items, Promotional --- Program, Wellness --- Programs, Wellness --- Promotion, Health --- Promotional Item --- Promotions, Health --- Wellness Program --- Clinical nursing --- Nurses and nursing --- Nursing process --- Health Promotion --- Holistic Health --- Patient Participation --- Care of the sick --- Medicine --- Refusal to Participate --- Integrative Medicine --- Health Education --- Preventive Health Services --- Preventive Medicine --- Health Sciences --- Social Sciences --- General and Others --- Behavioral Science (Psychology) and Counselling
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Hygiene. Public health. Protection --- gezondheidszorg --- Medical care --- Public health --- Medical policy --- Patient compliance --- Soins médicaux --- Santé publique --- Politique sanitaire --- Patients --- Periodicals --- Périodiques --- Coopération --- Health planning --- Health Services Research. --- Health Policy. --- Patient Participation. --- Health planning. --- Medical policy. --- Public health. --- Participation du public. --- Politique de la santé --- Santé publique. --- Health Sciences --- Law --- Social Sciences --- General and Others --- Policies --- Public Policy & Administration --- patient-centered care --- health care policy --- health services --- patient care --- quality improvement --- Health Services Research --- Health Policy --- Patient Participation --- Comprehensive health planning --- Health care planning --- Health services planning --- Medical care planning --- Planning --- Health services administration --- Patient Activation --- Patient Empowerment --- Patient Engagement --- Patient Involvement --- Patient Participation Rates --- Activation, Patient --- Empowerment, Patient --- Engagement, Patient --- Involvement, Patient --- Participation Rate, Patient --- Participation Rates, Patient --- Participation, Patient --- Patient Participation Rate --- Refusal to Participate --- National Health Policy --- Health Policies --- Health Policies, National --- Health Policy, National --- National Health Policies --- Policies, Health --- Policies, National Health --- Policy, Health --- Policy, National Health --- Policy Making --- Action Research --- Health Services Evaluation --- Healthcare Research --- Research, Medical Care --- Health Care Research --- Medical Care Research --- Research, Health Services --- Evaluation, Health Services --- Evaluations, Health Services --- Health Services Evaluations --- Research, Action --- Research, Health Care --- Research, Healthcare --- Human medicine --- Community health --- Health services --- Hygiene, Public --- Hygiene, Social --- Public health services --- Public hygiene --- Social hygiene --- Health --- Human services --- Biosecurity --- Health literacy --- Medicine, Preventive --- National health services --- Sanitation --- Health care policy --- Health policy --- Medicine and state --- Policy, Medical --- Public health policy --- State and medicine --- Science and state --- Social policy --- Government policy --- Law and legislation --- Political aspects --- Healthcare Policy --- Healthcare Policies --- Policy, Healthcare --- Health Care Policies --- Care Policies, Health --- Health Care Policy --- Policies, Health Care --- Policies, Healthcare --- Policy, Health Care
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